Thursday, March 18, 2010

a tune up..

This morning Jude saw his pulmonary specialist.  And everything went pretty well.  Jude reached 100% on his oxygen saturation levels.. and he stayed there!!! YAY!  A first since Jude had congestive heart failure TWO YEARS AGO!!  Also, to add to Mommy's delight, there was no wait.  Normally there is a 2-3 hour wait to see him.  Back to the oxygen.. even though Jude's saturation levels were at 100%, the doctor said that Jude will probably stay on oxygen at night until the age of 6 or 7 due to his sleep apnea and changes in his facial structure that will occur due to growth.  This did dishearten me a little because I was looking forward to saying Bye Bye to the oxygen tanks and concentrator.  After talking with the doctor, we decided to get Jude going on a little "tune up" this year.  He wants to coordinate with the GI specialist and do a bronchoscopy along with the endoscopy.  (One to look at his airways, to other to look at his esophagus)  We are also going to try to coordinate a  pediatric dentist and his urologist if needed at the same time.  We are having a little trouble finding a dentist that takes cases at OLOL.  We are also waiting on an appointment with the urologist to find out if he wants in on the action as well.  The good news is that these are all pretty non invasive procedures.  The not so good news is that Jude will have to be put to sleep and will probably need a central line done AGAIN.  This will also be a stay at the Lake but it should only be overnight.  This should all happen in about 6 weeks or so.  I know this may seem like a lot, but actually it's not that bad.  It's just a routine check to make sure that everything is going well since Jude is at such a risk for things to not be going well.

Other than all that stuff,  Jude is really doing great.  He's just a little WILD lately and we are kind of having a little trouble getting him to sleep at night at a decent hour.  We get him to bed and sleep just doesn't happen.  Suggestions for remedying this sleep thing are greatly appreciated.  ;)

This Saturday, we have a plan to go to the zoo with some of our friends since Daddy is working.  So I'm sure I will have some new pictures to post from that day.  Prayers that the rain stays away are also greatly appreciated...   Until then, lots of hugs and kisses from everyone's favorite little redhead!!!

Angel and Jude

1 comment:

Thank you for taking the time to share a kind word with me!